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The First Experience of Creating Registers of Patients with Eye Diseases in Moscow Region

https://doi.org/10.18008/1816-5095-2019-2-271-276

Abstract

This report is devoted to the problem of absence universal databases of patients with different chronic eye diseases and continuity of these patients between medical organizations. On the basis of MONIKI there has was held a prospective, observational cohort study of patients since 2016, with diagnoses: uveal melanoma — the first group of patients, degenerative States of the optic nerve and retina (multiple sclerosis, glaucoma) — the second group, — and vascular retinal diseases (venous occlusion, diabetic retinopathy) — the third group. There were 114 patients — in the first, 68 — in the second, 92 — in the third. There were developed statistically significant parameters of patients examination, adaptation of registers to application and increase of their efficiency continues to be corrected. All patients underwent standard ophthalmological examination, in addition-gonioscopy, ultrasound (ultrasound) in a and b-scan mode, including ultrasound biomicroscopy (UBM), optical coherence tomography (OCT), fluorescence angiography (FAG), computed tomography (CT) and/or magnetic resonance imaging (MRI) of the orbit. According to the indications, patients were examined by related specialists. For each patient group, prior results were obtained. They were late detection, untimely treatment and referral patients to other medical organizations, which proves the need to systematize patients with various pathologies and the subsequent continuity of medical organizations as for the timely detection of the disease, as for adequate and timely treatment not only at the local, but also at the regional or Federal levels. The integration of patients register with various ophthalmic diseases has a priority course in the development of healthcare in the Moscow region. 

About the Authors

A. A. Ryabtseva
Moscow Regional Research and Clinical Institute (“MONIKI”)
Russian Federation

MD, PhD, professor, the head of ophthalmologic department,

Schepkina str., 61/2, Moscow, 129110



E. E. Grishina
Moscow Regional Research and Clinical Institute (“MONIKI”)
Russian Federation

MD, PhD, professor, chief research officer,

Schepkina str., 61/2, Moscow, 129110



O. M. Andruhina
Moscow Regional Research and Clinical Institute (“MONIKI”)
Russian Federation

research officer,

Schepkina str., 61/2, Moscow, 129110



A. A. Kovrizhkina
Moscow Regional Research and Clinical Institute (“MONIKI”)
Russian Federation

junior research officer,

Schepkina str., 61/2, Moscow, 129110



S. G. Sergushev
Moscow Regional Research and Clinical Institute (“MONIKI”)
Russian Federation

PhD, leading research officer,

Schepkina str., 61/2, Moscow, 129110



E. N. Homyakova
Moscow Regional Research and Clinical Institute (“MONIKI”)
Russian Federation

PhD, assistant professor,

Schepkina str., 61/2, Moscow, 129110



I. O. Alyabeva
Moscow Regional Research and Clinical Institute (“MONIKI”)
Russian Federation

junior research officer,

Schepkina str., 61/2, Moscow, 129110



K. B. Kunizheva
Moscow Regional Research and Clinical Institute (“MONIKI”)
Russian Federation

ophtalmologist of outpatient department,

Schepkina str., 61/2, Moscow, 129110



References

1. Ovchinnikov E.N., Strogov E.M., Chegurov O.K. Medical registers as a quality management tool: analytical review. Economic Analysis: Theory and Practice = Ekonomicheskiy analiz: teoriya i praktika. 2016;(8):98–107 (In Russ.).

2. Yagudina R.I., Litvinenko M.M., Sorokovikov I.V. Patient registers: structure, functions, possibilities of use. Pharmacoeconomics: theory and practice = Farmaekonomika. 2011;4(4):3–7 (In Russ.).

3. Eichler H.G., Kong S.X., Gerth W.C. Use of cost-effectiveness analysis in healthcare resource allocation decision-making: how are cost-effectiveness thresholds expected to emerge? Value in Health. 2004;7:518–528.

4. Noe L., Larson L., Trotter J. Utilizing Patient Registries to Support Health Economics Research: Integrating Observational Data with Economic Analyses, Models, and Other Applications, MBA Ovation Research Group, Highland Park, IL, USA. Available from: https://www.ispor.org/news/articles/oct05/patient_registr.asp.

5. Piskunov D.Yu., Toboleva M.X., Czukanov A.S., The role of hereditary colorectal cancer registries in identifying risk groups and improving treatment outcomes. Almanac of Clinical Medicine = Al`manax klinicheskoj mediciny. 2018;46 (In Russ.). DOI: 10.18786/2072-05-05-2018-46-1-16-22

6. Avdeev R.V., Esaulenko I.E., Antonenkov Yu.E. Register of glaucoma patients as a way to improve their drug supply to reduce morbidity, Journal of Volgograd State University = Vestnik Volgogradskogo gosudarstvennogo universiteta. 2015;3(55):41–44 (In Russ.).

7. Grishina E.E, Lerner M.Yu., Gemdzhian E.G. Epidemiology of uveal melanomas in Moscow. Almanac of Clinical Medicine = Al`manax klinicheskoj mediciny. 2017;45(4):321–325 (In Russ.). DOI: 10.18786/2072-0505-2017-45-4-321-325

8. Grishina E.E, Lerner M.Yu., Gemdzhian E.G. Survival analysis of patients with uveal melanoma after organ preserving and liquidation treatment Almanac of Clinical Medicine. 2018;46(1):68–75 (In Russ.). DOI: 10.18786/2072-0505-2018-46-1-68-75

9. Domato B. Progress in the management of patients with uveal melanoma. The 2012 Ashton Lecture. Eye. 2012;26:1157–1172. DOI: 10.1038/eye.2012.126

10. Shields C.L., Kaliki S., Furuta M., Fulco E., Alarcon C., Shields J.A. American Joint Committee on Cancer Classification of Uveal Melanoma (Anatomic Stage) Predicts Prognosis in 7,731 Patients: The 2013 Zimmerman Lecture. Ophthalmology. 2015;122(6):1180–1186. DOI: 10.1016/j.ophtha.2015.01.026

11. Saakyan S.V., Panteleeva O.G., Shirina T.V. Estimation of long-term survival in uveal melanoma after organ-preserving treatment and enucleation. Russian Ophthalmological Journal = Rossiyskiy oftal’mologicheskiy zhurnal. 2011;1:67–70 (In Russ.).

12. Saakyan S.V., Panteleeva O.G., Shirina T.V. Metastatic disease characteristics and survival of patients with uveal melanoma depending on the method of treatment of the primary tumor. Russian Ophthalmological Journal = Rossiyskiy oftal’mologicheskiy zhurnal. 2012; 5(2):55–58 (in Russ.).

13. Damato E.M., Damato B.E. Detection and time to treatment of uveal melanoma in the United Kingdom: an evaluation of 2,384 patients. Ophthalmology. 2012;119(8):1582–1589. DOI: 10.1016/j.ophtha.2012.01.048

14. Trapp B.D., Nave K.A. Multiple sclerosis: an immune or neurodegenerative disorder? Annu Rev Neurosci. 2008;31:247–69. DOI: 10.1146/annurev.neuro.30.051606.094313

15. Yakushina T.I. Multiple sclerosis in patients with the late onset of the disease, clinical aspects, problems in diagnosis and treatment. Clinical gerontology = Klinicheskaya gerontologiya 2018;24(7– 8):52–56 (In Russ.).

16. Kita M. FDA-approved preventative therapies for MS: first-line agents. Neurol Clin. 2011;29(2):401–409. DOI: 10.1016/j.ncl.2011.01.007

17. American Academy of Ophthalmology Preferred Practice Patterns Committee. Preferred Practice Francisco, CA: American Academy of Ophthalmology; 2015. Available at: www.aao.org/ppp

18. American Academy of Ophthalmology. Clinical Statement. Intravitreal Injections. San Francisco, CA: American Academy of Ophthalmology; 2015. Available at: www.aao.org/guidelines-browse?filter=clinicalstatement. Accessed July 10, 2015.

19. WHO.int. Нарушения зрения и слепота [Режим доступа 26.09.2018]. URL: http://www.who.int/ru/news-room/fact-sheets/detail/blindness-and-visualimpairment. [Who.int. Blindness and visual impairment [cited 2018 Sep 26. Available from: http://www.who.int/ru/news-room/fact-sheets/detail/blind-nessand-visual-impairment (In Russ.)].


Review

For citations:


Ryabtseva A.A., Grishina E.E., Andruhina O.M., Kovrizhkina A.A., Sergushev S.G., Homyakova E.N., Alyabeva I.O., Kunizheva K.B. The First Experience of Creating Registers of Patients with Eye Diseases in Moscow Region. Ophthalmology in Russia. 2019;16(2):271-276. (In Russ.) https://doi.org/10.18008/1816-5095-2019-2-271-276

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ISSN 1816-5095 (Print)
ISSN 2500-0845 (Online)